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Suppiskey2surv avatar

Limitations and expectations

Caregivers | Last Active: 13 hours ago | Replies (2)

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Profile picture for lungranger77 @lungranger77

Hello @suppiskey2surv.
Thank you for sharing your thoughts. I find your transparency inspirational. I can also relate very closely to the spiritual perspectives you mentioned. Also admire your decision to set limits that would benefit your wellness.
I realize all of our patient care / life changing experiences can be very different but we all share that common thread of caring for loved ones and our individual realities are not cookie molds of others. Strong empathy can still exist.

I remember when my wife could effectively articulate subjectively. That was before her first of four battles with cancer. A left frontal brain tumor 2013. Radiation left its mark with a Neuro deficit. Over the years I've had to step up advocacy for her. Cognitive impairment has been interfering with her ability to communicate and remember. I was reminded of the month we stayed at The City of Hope in Los Angeles 2017 for chemo and stem cell replacement. I ended up in the local ER because of my lower back. That nasty lumpy cot was a recliner that made into a bed. Didn't plan for that surprise.

We believe God has been with us thru all the traumatic events. especially when we look back in retrospect and see how things could have turned out much worse. We're so grateful to have each other. She's 67, I'm 73. So much more to the journey but no need to share each traumatic adventure. But being able to share with other caregivers on this site is therapeutic for me. I like how you mentioned being surrounded by love. The support from family and friends. We've been so blessed to have had help when we needed it. Asking for help is so important.

Praying that your husbands condition continues to remain stable and even improves. You're doing a good job.
Ernie

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Replies to "Hello @suppiskey2surv. Thank you for sharing your thoughts. I find your transparency inspirational. I can also..."

@lungranger77

Your words, so sweetly offered in response, meant so much to me. THANK YOU!!!!

You, too, have had your share of "bad" . . . haven't you? My goodness! How inspiring!

Ernie . . . you are, truly, one of a kind! I don't mean to disparage your gender or anything . . . but you are, truly, one of a kind!

I suppose, if faced with more "bad", I will pick myself up and do what needs to be done; but, as I get older . . . I simply have to set certain limits as to how much I can do . . . physically OR emotionally! If my husband can mow the grass and spend 3 to 4 hours, outside doing stuff . . . I've decided he can certainly speak for himself now and again and monitor his own health when he needs to. "THEY" and even he doesn't seem to appreciate much of it anyhow when I try to "help". Just causes friction and resentment between his doctors and between himself and me. Sooooo, like today's appointment, he is pretty much on his own to deal with it. He left a little while ago so, I've decided to go outside and take advantage of the beautiful weather cleaning up a few flower beds.

Wishing you and your wife all the best!
Dawn