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Has anyone experienced recurrent pleural effusion with no clear cause
Lung Health | Last Active: Oct 29 9:08pm | Replies (14)Comment receiving replies
@pleasesayagain I'm going through the exact same thing. I'm thinking of asking if bio gentic testing would help. Have you had this done?
Replies to "@pleasesayagain I'm going through the exact same thing. I'm thinking of asking if bio gentic testing..."
@rtbullard
2nd reply
So you’re also dealing with a pleural effusion and still don’t know the cause? It’s still a mystery where it’s coming from? Which lung is affected, and how long have you been dealing with it? Is my case similar to yours? For me, it’s been really frustrating it’s been a year now. I’ve had surgery, and I still have pockets of fluid. I’m doing well physically, but mentally it’s been really tough. The anxiety is through the roof. I just want to understand why this keeps happening.
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@rtbullard
I’ve had every test and scan you can think of — imaging, ultrasounds, blood work, even a PET scan — and nothing ever showed anything. I don’t know how long you’ve been dealing with this, but if they still can’t find the cause, I’d suggest going ahead with the surgery, either pleurodesis or VATS, and getting a biopsy.
My biopsy, like I mentioned, didn’t show anything either. The surgery didn’t work 100%, which can happen — mine worked about 70%. But at least I don’t have to get drained every month anymore. Now, I just have to monitor my pockets of fluid.
If you have any other questions, feel free to message me. I’ve been dealing with this for about a year now and finally had surgery. Wish I had the surgery sooner.
What side is the pleural effusion?