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Family and friends deny long covid

Posted by suefish @suefish, Oct 6 11:53pm

Most of my family and a few friends, including a couple of MD’s, think that I either don’t have long covid or that I have a serious issue (such as dementia) also. I have had this for more than a year and have many signs: brain fog (worst), headaches, sinus congestion, sleepiness inappropriately, weird repeated dreams, and more. There are no significant clinics within a two hour drive. Can anyone name a place where I can at least get a diagnosis? The neurologist where I live blew me off. I’m in the old range but relatively in pretty good shape except for LC. Thanks to all of you who are presenting this opportunity to get help and information. @suefish

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suefish | @suefish | Oct 7 3:47pm
In reply to @bigj "Hope this helps. I’m an old man but in really good shape in my 60s I..." + (show)
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Hope this helps. I’m an old man but in really good shape in my 60s I was bench pressing 90 pound dumbbells. Each hand
Things were going great
F—- Covid hit I got all the same symptoms that you have specially brain fog. memory was horrible Can’t remember much after 2 to 3 weeks would feel like two or three years-what I kept doing for the next 2+ years was working out eating good and having good support system, my wife.
I was pretty bad at one point I needed help to walk 10 or 12 blocks where before I could walk all day
by the time I got home I felt somewhat OK finally now I’m getting better feeling better. It takes time.
Ps. This would’ve usually taken me give or take five minutes to write now took me 10 to 15 minutes but two years ago it would’ve took me 30 to 40
Stay strong

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@bigj : suefish says thanks for the encouragement!!

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suefish | @suefish | Oct 7 3:54pm
In reply to @dlydailyhope "@suefish Get a new neurologist and get evaluated and ask for mri of brain. Also, have..." + (show)
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@suefish
Get a new neurologist and get evaluated and ask for mri of brain. Also, have you had extensive bloodwork to check for abnormalities, viruses, thyroid function, hormone levels, etc. and have you ever been tested for sleep apnea?

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@dlydailyhope @suefish I NEED a good doctor. 😢

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suefish | @suefish | Oct 7 3:56pm
In reply to @suefish "I hope that my post made it to the posting area. 🤞🏻🙏🏻" + (show)
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I hope that my post made it to the posting area. 🤞🏻🙏🏻

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@suefish Thanks all.

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suefish | @suefish | Oct 7 4:10pm

Many thanks snd reassurances!

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suefish | @suefish | Oct 7 5:28pm
In reply to @suefish "@dlydailyhope @suefish I NEED a good doctor. 😢" + (show)
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@dlydailyhope @suefish I NEED a good doctor. 😢

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@suefish tested for many. No sleep apnea. Can’t find decent neurologist. Thx for suggestions.

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law59 | @law59 | Oct 9 10:01am
In reply to @suefish "@dlydailyhope @suefish I NEED a good doctor. 😢" + (show)
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@dlydailyhope @suefish I NEED a good doctor. 😢

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Hi @suefish may I suggest different avenue and dont recall if already suggested🙃. Most healthcare systems have patient advocates thru social worker etc. Contact with them explaining your extraordinary situation of specialized care needed and if that not productive can ask for a grievance to escalate with all your info already in the system🤞. Hope this helped and wish the quickest healing journey 🌈

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suefish | @suefish | Oct 9 4:48pm
In reply to @law59 "Hi @suefish may I suggest different avenue and dont recall if already suggested🙃. Most healthcare systems..." + (show)
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Hi @suefish may I suggest different avenue and dont recall if already suggested🙃. Most healthcare systems have patient advocates thru social worker etc. Contact with them explaining your extraordinary situation of specialized care needed and if that not productive can ask for a grievance to escalate with all your info already in the system🤞. Hope this helped and wish the quickest healing journey 🌈

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@law59 Thanks so much for your suggestion!😄

suefish

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h2998sc | @h2998sc | Oct 13 1:09pm
In reply to @celia16 "I don’t have any suggestions, but I hope you’ll get some. I was diagnosed with post..." + (show)
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I don’t have any suggestions, but I hope you’ll get some. I was diagnosed with post covid syndrome by my ENT at Duke Hospital, confirmed by Duke neurologist. My other doctors accepted it. I’m not sure how others, including my family , felt about the diagnosis mattered. Their opinions didn’t impact me. Also, since there isn’t any real treatment for LC, the diagnosis wasn’t of any real benefit to me either. For me, convincing others the reality of LC isn’t a priority.

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@celia16 . "Also, since there isn’t any real treatment for LC, the diagnosis wasn’t of any real benefit to me either".
There's TONS of rx for lc.
There's at least a starting point with that diagnosis.If you've got long covid...you can find help that works.

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suefish | @suefish | Oct 13 4:22pm
In reply to @h2998sc "@celia16 . "Also, since there isn’t any real treatment for LC, the diagnosis wasn’t of any..." + (show)
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@celia16 . "Also, since there isn’t any real treatment for LC, the diagnosis wasn’t of any real benefit to me either".
There's TONS of rx for lc.
There's at least a starting point with that diagnosis.If you've got long covid...you can find help that works.

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@h2998sc I have to agree with the individual who maintains that a starting point is needed only dependent on the nature of the problem/symptons, etc. suefish

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