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Reducing Pednisone

Polymyalgia Rheumatica (PMR) | Last Active: 3 days ago | Replies (21)

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Profile picture for lori62yb @lori62yb

@st1300 morning! I was diagnosed 4 years ago with PMR, and tried Methotrexate for 9 months and it didn’t work. I’ve been successful as of the last 6 months, by doing a very slow taper. For years, I couldn’t go below 5mg, but with the help of one of the group, when I taper, I alternate my new dose with the new dose…for 10 days. Then I settle in to the lower dose. I’m now on my lowest ever at 3mg. I did begin to have clavicle and side neck pain, along with inner elbow stiffness…especially at night…but it gets better during the days. I stay on the taper for 2 months. I’m 63 and I work out 4 days a week on my Peloton bike, and do weights. It keeps me sane! Life is so much better now! My Rheumatologist said I may always have some pain, but insisted I get off the steroids. As long as it stays like this, I can accept that!

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Replies to "@st1300 morning! I was diagnosed 4 years ago with PMR, and tried Methotrexate for 9 months..."

@lori62yb I may try your tapering method. I'm at 5 mg. I plan on reducing 1/2 mg every 4 weeks. But I may use your method if it flairs up. I was once off Prednisone for 3 mos, then the pain began again.

@lori62yb
Know how you feel.
I too experiencing clavicle and neck pain.
Thx for the reassurance I’m not alone.