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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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Randy Shields | @randallshields56 | Sep 27 12:11pm
In reply to @ladydi75 "I was diagnosed about a month ago and still waiting to see a neapologist. Most of..." + (show)
Profile picture for ladydi75 @ladydi75

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

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i hope you get some good news and being frightened and worried, there are
a lot more things i can mention. but in the end all that did was to make
me unhappy and worry more, so i put it in the blessings hands tand started
taking care of things i had been postponing. mostly little things.
some time later a couple operations and i am getting back to my old self.
just try to make others happier as i can.
have a blessed day.

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Dolly Jane | @dollyjaneprenzel | Sep 28 12:15pm
In reply to @ladydi75 "I was diagnosed about a month ago and still waiting to see a neapologist. Most of..." + (show)
Profile picture for ladydi75 @ladydi75

I was diagnosed about a month ago and still waiting to see a neapologist. Most of the information I received was from my daughter who is anRN and her friend who works with stroke patients and brain. So still don't know if mine is growing or not. I've had pain behind my right ear That seems to start there and go up into my brain. So not sure what that symptom is from, but hopefully the neurologist can give me some answers. Feeling a little worried and anxious about that. Hope you are all doing well.

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@ladydi75 I’ve got pain behind my left ear. It seems to go over the top of my head and down the right side. Gets worse with stress.

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Dolly Jane | @dollyjaneprenzel | Sep 28 12:19pm
In reply to @mono21 "Good morning! I haven’t been on for awhile but I have a quick update. I finally..." + (show)
Profile picture for mono21 @mono21

Good morning!
I haven’t been on for awhile but I have a quick update. I finally went to Mayo and I’m having surgery in November. Tumor will finally be out. It’s growing.
To be honest I’m scared.
Sending prayers to all of you

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@mono21
I am sure you are scared. I am scared but no surgery yet. I don’t know yet if mine is growing but am going for MRI tomorrow. Best wishes and blessings to you.

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mono21 | @mono21 | Oct 1 8:41pm

Thank you. I hope all goes well for you. Keeping you in my prayers. Good luck

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poofy | @poofy | Oct 2 11:28am
In reply to @dollyjaneprenzel "@mono21 I am sure you are scared. I am scared but no surgery yet. I don’t..." + (show)
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@mono21
I am sure you are scared. I am scared but no surgery yet. I don’t know yet if mine is growing but am going for MRI tomorrow. Best wishes and blessings to you.

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@dollyjaneprenzel how did your MRI go? Have you received the results yet.? Praying for you

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Dolly Jane | @dollyjaneprenzel | Oct 2 12:37pm

Thank you so much for checking. My MRI had to be postponed because of a conflict with an implant which no longer works. Went two days in a row. Very frustrating. Trying again next week. Will post. Appreciate your kindness! Dolly

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poofy | @poofy | Oct 3 5:42pm
In reply to @dollyjaneprenzel "Thank you so much for checking. My MRI had to be postponed because of a conflict..." + (show)
Profile picture for Dolly Jane @dollyjaneprenzel

Thank you so much for checking. My MRI had to be postponed because of a conflict with an implant which no longer works. Went two days in a row. Very frustrating. Trying again next week. Will post. Appreciate your kindness! Dolly

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@dollyjaneprenzel. oh no! I know that's frustrating. Hang in there

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poofy | @poofy | 3 days ago
In reply to @meepmufasa "I had no symptoms until a severe tonic/clonic seizure lasting 6 minutes sent me to ER...." + (show)
Profile picture for meepmufasa @meepmufasa

I had no symptoms until a severe tonic/clonic seizure lasting 6 minutes sent me to ER. It was my first seizure ever and they discovered the meningioma. Four days later , craniotomy. Successful removal of benign mass. Imbalance, some cognitive/verbal difficulties (seen as mild by family, driving me nuts), neuropathy and encephalomalacia are all topics I’ll be discussing with neurologist this February 2024.

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@meepmufasa I'm very happy on the successful removal of your tumor. It makes me feel calmer

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ankona | @ankona | 1 day ago

most of them are benign. Only 1-3% of them are stage 3 malignant, as mine was. Size and location has a lot to do with whether NS will do surgery, or watch and wait until it gets big enough. Mine was baseball size, so NS took it out right away, June 2024. It was over 6 MM (not cm). I didn't freak out about all this, because I know God is in charge, and this is part of His plan for me. My surgery was perfect, it all came out in one piece, and I went through 6 weeks of daily radiation because it was cancerous. I came through all of that unscathed by any loss of function or adverse complications except losing my hair from radiation. I know God planned for me to come through this unharmed because He's going to use me for something. I just don't know what that is yet. Try not to worry too much until you see the NS and find out how big it is and where it is. May God watch over you in the process

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ladyluck236 | @ladyluck236 | 1 day ago
In reply to @ankona "most of them are benign. Only 1-3% of them are stage 3 malignant, as mine was...." + (show)
Profile picture for ankona @ankona

most of them are benign. Only 1-3% of them are stage 3 malignant, as mine was. Size and location has a lot to do with whether NS will do surgery, or watch and wait until it gets big enough. Mine was baseball size, so NS took it out right away, June 2024. It was over 6 MM (not cm). I didn't freak out about all this, because I know God is in charge, and this is part of His plan for me. My surgery was perfect, it all came out in one piece, and I went through 6 weeks of daily radiation because it was cancerous. I came through all of that unscathed by any loss of function or adverse complications except losing my hair from radiation. I know God planned for me to come through this unharmed because He's going to use me for something. I just don't know what that is yet. Try not to worry too much until you see the NS and find out how big it is and where it is. May God watch over you in the process

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@ankona is 37.19 mm large & does it usually mean that it is a higher grade when it is larger?

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