@jlharsh
Hi Janell, I finally get back online and write a lengthy response and found out today that it didn't post, so here I go again. Overall, the entire trip was great, we were able to visit and stay with 4 different couples. The Mayo Clinic portion of the trip was very productive with the expected results. There were a couple of minor glitches but nothing that changes the outcome of the trip. My insurance denied the PET scan and because of that the doctor used the original scans and actually showed and explained them to us, which our doctor in Indiana did not do. Because of the denial my wife ended up not having to get the blood work or MRI so we were only there for one night.

Yes, a long trip for one night, but well worth it. The doctor was surprised and happy when we told him my wife was already getting the infusions which we thought he already knew. He even brought in another doctor just to speak with us and reassure us that she is on the right path.

I will say that everything everyone has about the quality of care the Mayo Clinic provides was spot on. I was very impressed and grateful that my wife was taken care with such kindness and efficiency.

We are now back in Indi and ready for Diana's 4th infusion tomorrow morning. On Thursday she gets her first MRI after starting the infusions.

So how was your trip to the Mayo Clinic? I hope it went as you and your husband expected...positive...

Now that things have slowed down for us I will make sure to post updates more frequently.

Ken