Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

Interested in more discussions like this? Go to the Digestive Health Support Group.

I, too, have a tortuous colon with chronic idiopathic constipation. About 3 years ago, I started taking Vibrant capsules which create peristalsis. It works pretty well most of the time. Check it out: https://vibrantgastro.com
My gastroenterologist told me I could eat anything. Because I was recently diagnosed with Parkinson’s, I am super careful to eat a healthy diet and get lots of exercise. My GI is also trying to get approval from Medicare for a drug called procalopride, which is helpful for people with chronic constipation as well as PD.
Good luck!

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Profile picture for electracat @electracat

@jlstjohn Thank you for sharing that! Wow, just read about the reason for your resectioning--that is wild. I'm glad you're 'ok' now, but yeah, sorry about the other issues. I will definitely see a PF therapist soon, and I'd be curious to see what they say! And, I wonder if i have the (rather) rapid gastric emptying, too. It certainly seems like it, or maybe my body is producing a normal amount of poop and i'm just not used to it wanting to...come out, so soon! Either way, it's very uncomfortable and takes away quality of life. Does anything help with those two issues, for you (pelvic wand! I'll have to look that up!!!)--best to you! J

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@electracat yes, it was quite the experience, for a mid 40s lady who had never had any kind of surgery to have emergency surgery and a subsequent 2 week hospital stay. I was on TPN for 1 month, but have not required it since. The pelvic wand helps my pelvic floor muscles relax...so when that feeling of things not wanting to come out, they CAN now. For the rapid gastric emptying, I recently switched from Motegrity back to Linzess. I was under the impression that Motegrity worked exclusively in the small and large intestines to propel things along, but my GI doctor said it stimulates everything, including the stomach, which obviously is not ideal for someone with rapid gasttic emptying. So far I am not convinced, but will give it more time. I also am on a low dose of cholestyramine for bile acid diarrhea, which is helping reduce the frequency and improve the consistency of my BMs. Hope that helps some.

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Profile picture for jlstjohn @jlstjohn

@ina9 My therapist recommended purchasing the pelvic wand through a company called Intimate Rose. Their website is great and they have many You Tube videos to help you get started. Basically it is an s-shaped device with a skinnier end for rectal insertion (the end that I use exclusively) and a thicker end for vaginal use. There is definitely a learning curve, but it did not take me long to become comfortable with using it. Very important is to use a water-based lubricant with it. This company has their own that they promote, which I have tried, but I prefer KY jelly. PS, my name is not John, my last name is St. John. I am actually a female 🙂. All the best!

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@jlstjohn , interesting info. I read your earlier post about the wand and almost bought one. I decided to try focusing without it. So far, it’s going pretty well. I have learned that I must go to the toilet and try to go, regardless of whether I feel the urge. Most of the time I do. I can see why the wand would assist, though and if I have difficulty again, I’ll likely try one.

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Profile picture for jlstjohn @jlstjohn

@electracat yes, it was quite the experience, for a mid 40s lady who had never had any kind of surgery to have emergency surgery and a subsequent 2 week hospital stay. I was on TPN for 1 month, but have not required it since. The pelvic wand helps my pelvic floor muscles relax...so when that feeling of things not wanting to come out, they CAN now. For the rapid gastric emptying, I recently switched from Motegrity back to Linzess. I was under the impression that Motegrity worked exclusively in the small and large intestines to propel things along, but my GI doctor said it stimulates everything, including the stomach, which obviously is not ideal for someone with rapid gasttic emptying. So far I am not convinced, but will give it more time. I also am on a low dose of cholestyramine for bile acid diarrhea, which is helping reduce the frequency and improve the consistency of my BMs. Hope that helps some.

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@jlstjohn Thanks for sharing this. Wishing you good health! Sounds like you have a few things that you know can help, which is great.

I just saw a new GI (heard great things about her) and it was not a good experience. Upon leaving, i realized she never once mentioned motility drugs (linzess etc)...and so many other things.

I just had several gushing nosebleeds in the last 24 hours, which (upon researching) seems connected to straining, which then makes me lose all hope. OR, makes me renew efforts to get gut under control....Really scary! I've noticed increased reflux lately, though more of the respiratory type, with my ears, etc getting full, but the nosebleeds are new! UGH.

Is this forum (mayo) the best one you've been on, for GI stuff? Or is there another forum you'd recommend for women and gastro stuff? Thanks and good wishes. This all stinks!

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Hello, onaquest,
Sort of by accident, my redundant sigmoid colon was discovered by imaging. My gastroenterologist traced it for me and said it was one of the worst in terms of length and curves that he has ever seen. My doctor wants me to start on Motegrity. Currently I am having some success with senna, VSL#3 probiotic, abdominal massage while defecating, digital manipulation while defecating, and diaphragmatic breathing. I'll let you know how the Motegrity works. Good luck to you.

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Profile picture for electracat @electracat

@jlstjohn Thanks for sharing this. Wishing you good health! Sounds like you have a few things that you know can help, which is great.

I just saw a new GI (heard great things about her) and it was not a good experience. Upon leaving, i realized she never once mentioned motility drugs (linzess etc)...and so many other things.

I just had several gushing nosebleeds in the last 24 hours, which (upon researching) seems connected to straining, which then makes me lose all hope. OR, makes me renew efforts to get gut under control....Really scary! I've noticed increased reflux lately, though more of the respiratory type, with my ears, etc getting full, but the nosebleeds are new! UGH.

Is this forum (mayo) the best one you've been on, for GI stuff? Or is there another forum you'd recommend for women and gastro stuff? Thanks and good wishes. This all stinks!

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@electracat This is the only forum I am a part of. I have certainly benefited from others ideas, especially regarding certain products (OTC). I wish you all the best...one day ata time, that is all we are promised, anyway!

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