Peripheral Neuropathy - Result of PMR or Prednisone?

"Perhaps if we had tapered much more slowly at the beginning things would have gone better."
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I don't know but maybe I tapered too slowly. It took me more than 12 years to taper off prednisone. My rheumatologist said I tapered too quickly at the start of PMR. She recommended a "stable dose" for an "extended period of time" before trying to taper.

I never lowered my dose every month until I was less than 10 mg. It was more like staying within a certain range for a long time. I was in the 20-30 mg range for 5 years. After the first 5 years I was able to stay in the 10-20 mg range for another 5 years. It wasn't like I didn't try to taper ... I just needed to stay within a certain range.

I wasn't able to do less than 10 mg for another 2 years. That was when my rheumatologist convinced me to try Actemra. After that my taper was much faster:

1 mg per month for 3 months to 7 mg.
1 mg per week for 4 weeks to 3 mg.

I was instructed that I should NOT taper any lower than 3 mg because my cortisol level was too low when I was on 3 mg. I had to stay on 3 mg for 6 months until my cortisol level improved at which time an endocrinologist said I could simply stop taking Prednisone without tapering. I tapered anyway.

1 mg every 2 days to zero.

I have been off Prednisone for nearly 5 years but I still do a monthly infusion of Actemra. I still have some pain but I feel infinitely better being off prednisone. I don't need anything except for Actemra to control my pain ... not even ibuprofen.

I still see an endocrinologist who is helping me overcome my Prednisone side effects. My rheumatologist controls my Actemra dose.

I have peripheral neuropathy in feet which only started with my diagnosis of large cell arteritis resulting in my taking 60mg of prednisone initially and being weaned very slowly down to 5 mg. Unfortunately I had another double vision episode and I had to go back to 50mg. I'm on my way down again [ 37.5] and tomorrow down to 25mg. It has been such a "roller coaster" time for me .
My Drs are not keen to blame prednisone for the neuropathy but the coincidence for me is too strong to deny. It has changed my life going from a reasonably fit , still quite agile 79 year old woman to a wobbly , slow moving old lady. Not impressed at all . I acknowledge that my eyesight is of key importance so I know that I have to comply.