← Return to Parkinsonism Traits with No Diagnosis I’m Frustrated, Anyone else?

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@teacher502 Thank you for sharing this excellent advice! Getting a diagnosis for one’s issues is such a frustrating experience. We all present in different ways especially while it’s early. While the journey may have similarities it will also have differences. My diagnosis was Aug 11, and it has brought me some peace for my “odd” symptoms. I cannot say it was a complete surprise, as my uncle had Parkinson’s, and my dad had Alzheimer’s; but it did take me a week or two to adjust and develop an actionable plan. I have prioritized a break from being poked, tested and doing any more research. I had already arranged most of my EOL stuff, so I am finally free to take a long needed vacation from EVERYTHING! I realize how fortunate I am to be able to do this. I don’t sweat the small stuff ( like the also recently diagnosed indolent lymphoma and ascending thoracic aneurysm). Friends tell me I have my smile back! I laugh a lot and am back to enjoying this beautiful world around us. Are there bad days? of course. But I am very grateful for what this experience has taught me. Today the sun is out, and I can hear the neighbors toddler giggling, it’s a good day!

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Replies to "@teacher502 Thank you for sharing this excellent advice! Getting a diagnosis for one’s issues is such..."

@janna2 it is frustrating, no doubt…I was dx with psp at the Cleveland clinic although there is no cure, I was happy to get a diagnosis..I keep falling and loose my balance, extreme fatigue, can’t write, can’t drive and a host of other issues.