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DiscussionSevere Iron Overload caused by too many IV Iron infusions
Blood Cancers & Disorders | Last Active: Nov 23 9:56pm | Replies (50)Comment receiving replies
Replies to "gujeff123 What a relief! I have been praying hard that all your concerns will be addressed..."
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@kndaustin71 Unfortunately I am unable financially to stay at MAYO or ion Rochester for my treatments. The team told me they are going to be more aggressive with the Phlebotomy. One doctor stated he wants to draw 250 to 500 cc's of blood per month. I hope he can make that happen, but I'm worried because the ferritin is in my bone marrow already and it and/or other problems with my red blood cell production is preventing me from producing RBC's that are full of oxygen. I think one of the conditions is called Anisocytosis. My hemoglobin will certainly drop when they draw my blood out. The answer to the question that is unknown, until they try the 1st phlebotomy, is how low my hemoglobin and RBC's drop and how long it takes them to get back to a safe level for them to do another Phlebotomy. These problems I'm facing now might not be there if my Hematologist here at home had referred me to Mayo a year and a half ago. Sometimes I get so angry at him and a couple other doctors I'm seeing, since there is no communication between any of them. I've actually been told a couple of times, " that's not something I know about, so you'll have to ask _________________," (fill in the blank) about that. The entire Medical Center has a shortage of doctors in every department and in some departments, such as one that deals with Liver problems, which I have, there is no MD. I see a PA about the iron in my liver. I'm just feeling helpless because in order for me to see another Hematologist, It's 90 miles away and I have severe chronic anemia. But I may have to just do it. Thanks for your support.