What supplies to stock up before prostate surgery?

Posted by xirtam22 @xirtam22, May 28, 2024

I was recently diagnosed with mid grade prostate cancer (Gleason 4+3). I was given option of either Proton Beam+Hormone treatment or nerve sparing prostatectomy. I’m leaning toward the later since I can use radiation in the future if I have recurrence.

I suspect there are previous discussions regarding product recommendations for incontinence post surgery? I will search again, but would appreciate any current recommendations. I’m an active 63 year old that enjoys hiking, biking, golfing and skiing. I realize biking will be on hold as I progress through recovery.

Thanks for your input!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for surftohealth88 @surftohealth88

Great list and I am sure it will help many !👍😎

My husband had zero irritation with catheter and did not have to use special creams.
He was in love with snap on pants though. : )))

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Same with me no irritation. I was going to my clients offices and I had to empty the bag occasionally, but was able to do that in a small bathroom for 1 at all offices since my clients didn’t have a lot of employees.

The catheter was real convenient actually.

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Profile picture for soli @soli

I would like to share a list of the supplies I purchased ahead of my surgery which I found useful, and those that were not, so others getting ready for surgery can learn from.

Waste baskets to place cathether bags in at night. A couple of times I did not fully close the bag after emptying it, and the waste basket prvented my carepet from being damaged with urine!

A cathether plug I use when I shower. I remove the night bag, plug the cathether and shower without dragging the bag: very convenient and liberating,

Lots of alcohol wipes to clean cathter tips, plugs etc. The hospital did not supply enough.

Cleaning alcohol and measuring cup with pointed mouth for washing cathether bags

Over shower glass door hooks for hanging washed cathether bags

Baby wipes for sanitation

Donut cushion to ease the pain of sitting on regular chairs

Disposable gloves

Grabber reacher tool (a life saver too since you can pick up stuff without bending and huring your surgical area)

Toilet seat Squat (I beleve the slang is 'Squatty potty" :)) Important to avoid straining after surgery: it is much better and safer to use the power of gravity through squatty potty instead.

Absorbent pullups to be used after the cathether is removed.

Water proof incontinece pads for chairs, bed, car seat etc. I never needed it, but it was reassuring to have it in place if ever it is needed.

Items I purchased in advance which I did not really use (or really need) include a cathether tube clamp (no need, you can just use your fingers), tearup pants (regular pants or shorts are just fine)

Hope this helps.

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Great list, @soli.

For anyone perparing for prostate surgery, also see these related discussions:
- Supplies recommendations post prostatectomy https://connect.mayoclinic.org/discussion/supplies-recommendations-post-prostatectomy/
- What supplies did you have ready for urinary incontinence after RP https://connect.mayoclinic.org/discussion/post-rp-supplies-for-ui/
- Prostate cancer surgery: What can I expect & prepare for? https://connect.mayoclinic.org/discussion/48-about-to-have-prostate-removal-surgery/

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Profile picture for soli @soli

I would like to share a list of the supplies I purchased ahead of my surgery which I found useful, and those that were not, so others getting ready for surgery can learn from.

Waste baskets to place cathether bags in at night. A couple of times I did not fully close the bag after emptying it, and the waste basket prvented my carepet from being damaged with urine!

A cathether plug I use when I shower. I remove the night bag, plug the cathether and shower without dragging the bag: very convenient and liberating,

Lots of alcohol wipes to clean cathter tips, plugs etc. The hospital did not supply enough.

Cleaning alcohol and measuring cup with pointed mouth for washing cathether bags

Over shower glass door hooks for hanging washed cathether bags

Baby wipes for sanitation

Donut cushion to ease the pain of sitting on regular chairs

Disposable gloves

Grabber reacher tool (a life saver too since you can pick up stuff without bending and huring your surgical area)

Toilet seat Squat (I beleve the slang is 'Squatty potty" :)) Important to avoid straining after surgery: it is much better and safer to use the power of gravity through squatty potty instead.

Absorbent pullups to be used after the cathether is removed.

Water proof incontinece pads for chairs, bed, car seat etc. I never needed it, but it was reassuring to have it in place if ever it is needed.

Items I purchased in advance which I did not really use (or really need) include a cathether tube clamp (no need, you can just use your fingers), tearup pants (regular pants or shorts are just fine)

Hope this helps.

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Pad for my side of the bed, car and chair. Disposable incontinence underwear (babies wear diapers), and pads for a couple of months. Oh, and parked a 5 gallon bucket by the bed for the week in case I needed to empty my cath at night. Easier to go back to sleep and only needed it the first night.

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Profile picture for heavyphil @heavyphil

All the suggestions made here are great. One thing I would add - a washable sheet protector (it’s about 3’X3’ and completely washable). You can get it at CVS or any major pharmacy.
After graduating from diapers and then to pads, after a few months I was completely continent and happy….and then it happened - the out of nowhere wake up at 2 in the morning soaking wet in urine scene. I wanted to scream.
Had to wake up my wife, strip the bed, throw out the $400 Tempurpedic mattress topper, etc. Thank God we had a waterproof mattress cover or else the $5K latex mattress would have been pitched too! It was a real emotional setback for me.
I got the protector pad the next day and it has since saved my butt a few more times. I finally figured out that if I ate a very gassy meal - beans usually (which I love) my sphincters must get confused and allow the floodgates to open, letting out both gas - and urine. And I did my Kegels religiously!
Sorry, lots of TMI on this site but that’s what we’re here for.
Anyway, just my 2 cents since I sleep completely unafraid now even though it hardly ever happens. Best to you!

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@heavyphil glad to hear that things are much better now. Thanks for sharing your experience.

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Profile picture for heavyphil @heavyphil

All the suggestions made here are great. One thing I would add - a washable sheet protector (it’s about 3’X3’ and completely washable). You can get it at CVS or any major pharmacy.
After graduating from diapers and then to pads, after a few months I was completely continent and happy….and then it happened - the out of nowhere wake up at 2 in the morning soaking wet in urine scene. I wanted to scream.
Had to wake up my wife, strip the bed, throw out the $400 Tempurpedic mattress topper, etc. Thank God we had a waterproof mattress cover or else the $5K latex mattress would have been pitched too! It was a real emotional setback for me.
I got the protector pad the next day and it has since saved my butt a few more times. I finally figured out that if I ate a very gassy meal - beans usually (which I love) my sphincters must get confused and allow the floodgates to open, letting out both gas - and urine. And I did my Kegels religiously!
Sorry, lots of TMI on this site but that’s what we’re here for.
Anyway, just my 2 cents since I sleep completely unafraid now even though it hardly ever happens. Best to you!

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@heavyphil -- Interesting comment. Although I consider myself fully continent, I've noticed when sitting on the toilet during bowel movements that if simply pass gas I also have an involuntary urine release. For whatever reason, I simply don't seem to have a lot gas in my old age so it isn't something I've had to worry about. But if I feel the urge to pass gas, I'll hold it until I can get to a toilet. I never mentioned it as I thought it was just me 🙂 It's actually a bit of a relief knowing it's not just me. I certainly don't know but I suspect that since passing gas happens infrequently our subconcious minds just haven't figured out how to handle the new normal when it comes to passing gas without releasing urine. For sleeping I think I might go back to the 3' X 3' waterproof pad based on your comment. Best wishes.

REPLY
Profile picture for heavyphil @heavyphil

All the suggestions made here are great. One thing I would add - a washable sheet protector (it’s about 3’X3’ and completely washable). You can get it at CVS or any major pharmacy.
After graduating from diapers and then to pads, after a few months I was completely continent and happy….and then it happened - the out of nowhere wake up at 2 in the morning soaking wet in urine scene. I wanted to scream.
Had to wake up my wife, strip the bed, throw out the $400 Tempurpedic mattress topper, etc. Thank God we had a waterproof mattress cover or else the $5K latex mattress would have been pitched too! It was a real emotional setback for me.
I got the protector pad the next day and it has since saved my butt a few more times. I finally figured out that if I ate a very gassy meal - beans usually (which I love) my sphincters must get confused and allow the floodgates to open, letting out both gas - and urine. And I did my Kegels religiously!
Sorry, lots of TMI on this site but that’s what we’re here for.
Anyway, just my 2 cents since I sleep completely unafraid now even though it hardly ever happens. Best to you!

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@heavyphil Thanks so much for suggestions.

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Profile picture for retireditguy @retireditguy

@heavyphil -- Interesting comment. Although I consider myself fully continent, I've noticed when sitting on the toilet during bowel movements that if simply pass gas I also have an involuntary urine release. For whatever reason, I simply don't seem to have a lot gas in my old age so it isn't something I've had to worry about. But if I feel the urge to pass gas, I'll hold it until I can get to a toilet. I never mentioned it as I thought it was just me 🙂 It's actually a bit of a relief knowing it's not just me. I certainly don't know but I suspect that since passing gas happens infrequently our subconcious minds just haven't figured out how to handle the new normal when it comes to passing gas without releasing urine. For sleeping I think I might go back to the 3' X 3' waterproof pad based on your comment. Best wishes.

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@retireditguy

the way I look at it, a night time event is a low probability, but with a high consequence

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Profile picture for marlon @marlon

@retireditguy

the way I look at it, a night time event is a low probability, but with a high consequence

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@marlon -- well said. I completely agree.

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