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Okay, I need your responses and help with this one
Caregivers: Dementia | Last Active: 23 hours ago | Replies (83)Comment receiving replies
@kartwk my husband has White Matter Disease and vascular dementia. The most important thing for me was getting the neuropsych testing for a “baseline” in the early days of MCI. It was repeated 8 years later- same tests, same tester. Seeing the results of the first testing, I was surprised at the wide spread of deficits. Seeing the results of the second testing, with significant deficits, was comforting in a way, I wasn’t “seeing things”. I had a better idea of what was going on and what I needed to do to plan for our future. My husband enjoyed the testing- said it was “fun”, mentioned “puzzles”.
I quietly made a follow-up appointment to meet the neuropsych guy by myself. I highly recommend this- gave him leeway to be frank and candid, gave me space to ask difficult questions about what this and that meant.
About the rollater- I got my husband one thinking it would help, but he would get going way too fast, get distracted and bump into things, and never got the idea of setting the brakes. It’s gathering dust in the garage now.
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@centre
The only test our PCP ever gave H was a simple one where he gave H 3 things to remember and then came back and asked him what those 3 things were. H remember 2 of the 3, but that really didn't represent the problem I had talked to Doc about concerning him.
H doesn't get a lot of what the Doc tells him about his health, he relies on me to explain it to him in front of the Doc, more and more. I have to break it down in to simpler terms sometimes 2 or 3 times.
H never use to be like that but I don't understand why the Doc isn't catching it.
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@centre
Thank you, I keep trying to get him to the right docs but while he isn't the sharpest right now he still is very suspicious about EVERYTHING.
I have gotten a puzzle that I work on and encourage him to work on so I can see and make note for Doc about how he does. He will work on it for a bit, might find a few pieces and then get frustrated and go back and watch some senseless show on tv.
I hate to say it but it feels good to know someone understands what it is to go through this. To have someone to talk to more or less.