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I posted as a newbie on here but can't find my post. ALL OF US CAREGIVERS suffer burnout and in my case suicidal thoughts and am seeing therapists and DR. BUT i don't think allot of these people can understand how bad it is for the caregiver. EVERYDAY i think about killing myself. THEN THEY TELL YOU TO CALL 988. I have been hospitalized trying to deal with this and my husband who is the cancer patient has freaked out with me discussing this when he is trying to focus on living so how backwards does this sound to all of you?
Replies to "I posted as a newbie on here but can't find my post. ALL OF US CAREGIVERS..."
@deniae My wife has lived with MS for more than 35 years, so I understand the frustration you’re describing. Our social life is limited because many people don’t grasp what she’s dealing with. Even family members often avoid getting involved, which adds to the strain.
It’s hard to explain the mood swings or the fact that long‑term planning is nearly impossible. Because of the way her MS presents, she can look completely fine on the outside while feeling overwhelmed or hurt by how others ignore her or fail to understand what’s happening.
I’ll admit I sometimes struggle with burnout and feel the need to step away. But she can be very dependent, and that makes things difficult. A lot of what I’d like to do ends up on hold because I’ve become so cautious and co‑dependent. I’m constantly worried that if I leave her alone, she might fall or injure herself, and I won’t be there to help.
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@deniae
I can understand how you feel. I haven't reached that point but what I deal with really gets to me. Especially the CONSTANT moaning and groaning, honking and trying to get up nonexistent phlegm - ALL DAY, EVERY DAY on top of his mental deterioration.
I know I shouldn't let his adult children get to me, but when they are lining up to go for anything he has his name on after he passes (AND he is a long way from that right now), well that is one more thing that adds to my state now.
Like you say, every one tells you to get help. But getting help is difficult and expensive. H also makes it difficult.