← Return to HCM-ers: Introduce yourself or just say hi

Discussion
Comment receiving replies
Profile picture for pallen1954 @pallen1954

Pamela Allen 71 Disgnosed with cardiomyopathy June 2025. Currently taking Camzyos. Am just now starting the 10 mg, hope my numbers go down!! I don’t want surgery. I live in North Louisiana. Am otherwise healthy, still working

Jump to this post


Replies to "Pamela Allen 71 Disgnosed with cardiomyopathy June 2025. Currently taking Camzyos. Am just now starting the..."

Hi @pallen1954 and welcome to Mayo Clinic Connect.
I'm glad you are here to share with others like you. It must still feel surprising to learn that at 71, you have this condition. It's good you are healthy otherwise, that's a bonus.
I had to have open heart surgery, and I can testify that I too did not want surgery!
Nobody does...it's frightening just thinking about it!
Hopefully the Camzyos will help alleviate the bothersome symptoms and your life with be more normal.
Camzyos is a wonder drug to some and for others it does not work, so hopefully this choice works out for you and you'll be so much better.

I can say to you with confidence, that now since I have had open heart surgery, it may not be fun, but it takes care of the obstruction for good.
One and done so to speak...no life-long medication to take, which may or may not have side effects.
Have you had a chance to read the stories on the Camzyos group? Here's a link in case you have not:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
Is your cardiologist up-to-date on all things HCM/HOCM?
When do you get your next echo?