@tweetypie13

Tapering off or stopping Kevzara should be doctor guided because of the risk of a relapse.

Rheumatologists often apply strategies learned from similar medications, like Actemra (tocilizumab), or they simply follow the protocol of the clinical trials. There aren't any established protocols for stopping Kevzara. A doctor may opt for extending the time between Kevzara injections or simply stop the medication at the one-year mark if the patient is in remission.

I'm doing monthly Actemra infusions. My rheumatologist doesn't think it is wise for me to ever stop Actemra as long as Actemra continues to work. If I don't have any serious side effects from Actemra or have an infection, the plan is to continue doing my monthly Actemra infusions. Actemra was stopped a couple of times by my symptoms returned and my inflammation markers increased.

@tweetypie13 I started KEVZARA in December of 2024. Since then my wbc has been low. Hovering below and just above the normal range, and below what I had been at for years while on prednisone longer than I’ve had 7/8 infections requiring antibiotics, one being diverticulitis. So my rheumatologist stopped my KEVZARA and I’m starting back on 5mg prednisone. Hopefully it can keep the inflammation under control and no flare.

@tweetypie13 I did not use kevzara. I was able to wean off steroids. I think as Dadcue mentioned its not so much the tapering of kevzara that is the problem but the disease itself. I chatgpt all my stuff. I have become addicted to answering any of my questions. I also like Dr Megan. she has many videos discussing a range of subjects on prednisone use.