Hello --
In July, I started a two-year treatmment plan of Dara-VCD (Daratumumab with bortezomib, cyclophosphamide, and dexamethasone) for a rare blood disease, known as MGRS. I live in France, and I am being treated in France, and this is the treatment that is also used here for myeloma. I know it is FDA approved in the US, but I don't know if it is readily used.

I take an oral medication weekly, and then receive two injections weekly at the hospital. My side-effects have been minimal. Some minor nausea, some fatigue and shortness of breath that worsened after 6 weeks as my hemoglobin count decreased -- but a blood transfusion fixed that quickly. In the beginning, I also had very sensitive skin on my arms, and one-night per week of insomnia. But, actually, I have no idea which of the meds in the combo is causing which issue. The doctors told me that the side-effects are genereally "well-tolerated", and I would have to agree. I am more bothered by the frequency of medical appointments that I am of the side-effects of the drugs.

Good luck to you and your husband.