Anyone have chronic lymphocytic leukemia (CLL)?

Posted by hikerny @hikerny, Apr 1 12:40pm

Any individuals with a CLL diagnosis?
Cliff

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Profile picture for momh @momh

Yes a close relative just diagnosed. No symptoms, just weird blood test, and more tests confirmed. In a wait and watch mode now. Looks promising.

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@momh, welcome. It can sometimes be distressing when the recommended treatment is "watch and wait". People may equate this with "doing nothing," which is why I personally prefer the term "active surveillance," which implies careful monitoring.

How is your close relative doing? Do you have any questions about living CLL?

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Profile picture for bochos @bochos

All I can say is follow your Doctor’s advice. If one isn’t comfortable with the advice then find another doctor or hospital for a second opinion. I am very happy with my doctor. After being diagnosed with CLL it was dormant (for lack of a better word) for 2/3 years then I had a flare up. After treatment and blood tests it is now not an issue. But that doesn’t mean it won’t become an issue in the future. Having a doctor you know/like/believe in is a good start. I’m not recommending any doctor or hospital but one has to find a doctor they can believe/trust. I have that so I just trust her. So, I just keep a positive attitude hope for the best. Having CLL is not a good condition to have but having a positive attitude is a good thing to have and each person who has CLL can control their attitude. BE POSITIVE.

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@bochos

I have an excellent doctor that I trust also which I think keeps me positive. I am in the Wait and Watch period right now. Sounds like you are doing well now I hope that continues for you. Are you in the US? I am in Canada God Bless

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