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Living with lung cancer - Introduce yourself & come say hi
Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)Comment receiving replies
Rather timid here. First time to post. July 9 I had the lower lobe of my left lung removed due to a pulmonary carcinoid (stage 3) followed in August by removal of lymph nodes. All except the two nodes taken with the first surgery were clear. In September my Chromogranin A, Serum was 929 ng/ml (normal is 93 ng/ml or lower). December's blood test indicated that it had risen to 1614 ng/ml. A new CT Scan is to be done sooner than the one originally planned. I am trying not to be concerned. Any advice or comments?
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@carrington, I add my welcome to you as well. I'm so glad you found the courage to post. As @merpreb points out, carcinoid cancers are a different beast. We actually have a group dedicated to carcinoid cancers and neuroendocrine tumors here:
- Neuroendocrine Tumors (NETs) https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/
In addition to following the Lung Cancer group, I encourage to also follow the NETs group. You may wish to take part in this discussion:
- Typical Carcinoid Tumor in Lungs https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/
I can imagine that having the CT scan appointment moved sooner starts the wheels of anxiety spinning. But I would see it as Merry suggests. The sooner you get results, the sooner you know what you're dealing with and you and your cancer team can take action. Please keep us posted and feel free to share your worries here. How does the saying go? A worry shared is a worry halved.