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Heather McFarland avatar

A Summary of My Multiple Myeloma

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (59)

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Profile picture for Chris, Volunteer Mentor @auntieoakley

@jadams4197 It is never too late to treat myeloma, there are a ton of tools to treat this cancer. There are two links in this email, the first one is a page here on connect where you can connect with other folks who were newly diagnosed.
https://connect.mayoclinic.org/discussion/multiple-myeloma-bone-marrow/
My husband was diagnosed with very advanced disease and was much older than you are, and he has been living with this for over 15 years and his quality of life has been mostly good.
The second link is for the International Myeloma Foundation.
https://www.myeloma.org/multiple-myeloma/multiple-myeloma-diagnosis
This link is for the newly diagnosed, and the place where we found all the best information when he was first diagnosed.
The best piece of advice I can give, is to get informed, find out what your test results are exactly and start reading, while you wait for the next test.
The second best advice I can give is find a doctor who treats a lot of myeloma or get a consult at a larger cancer center or university if possible.
Have you had your bone marrow biopsy confirmation yet?

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Replies to "@jadams4197 It is never too late to treat myeloma, there are a ton of tools to..."

@auntieoakley Thank you so much!!! My husband was diagnosed August 2025.