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Chiari Malformation type 1

Brain & Nervous System | Last Active: Oct 6 3:59am | Replies (155)

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Profile picture for lwoodbrey @lwoodbrey

@tisme I guess it really would depend on how debilitating your headaches are. I have suffered with headaches and dizziness since I was nine years old. I wasn’t diagnosed with Chiari 1 until I was 36. My headaches however have improved over the last year when my rheumatologist put me on hydroxychloroquine and methotrexate for another condition that I have, which has relieved some of the fluid buildup from my chiari. I have chosen not to have surgery and have a 15 mm herniation. I have been to two neurologists, one saying I needed surgery, the other thinks I don’t need surgery. The neurosurgeon told me not to come back unless I make up my mind. That was 10 years ago. I still haven’t had surgery. I hope you find the answer for your headache. I wish you luck in your journey.

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Replies to "@tisme I guess it really would depend on how debilitating your headaches are. I have suffered..."

@lwoodbrey I was on hydroxy for rheumatoid , but lately my eyesight has blurred, methotrexate I cant have due to non alcoholic fatty liver. I have a subdural hygroma and herniation of the tonsils The headaches are enough to make functioning painful

@lwoodbrey I just read the xray report from the local hospital and its got me freaked no wonder I am having headaches yet no one is doing anything