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A Summary of My Multiple Myeloma
Blood Cancers & Disorders | Last Active: 3 days ago | Replies (59)Comment receiving replies
I’m sorry I don’t know where to go to ask questions, find help, or anything really. In the last 48 hours I spent every minute on google and found it’s only scared me into mental exhaustion. I’m 45 and was just told something about I’d went from 0.2% to 3% of something with something else at 10%….I’m sorry I have no clue what this means and never had an idea I was this sick. Would someone please point me to the best place for multiple myeloma information and providers and hospitals. Or am I to late and best enjoy my time
Replies to "I’m sorry I don’t know where to go to ask questions, find help, or anything really...."
@jadams4197
Hello friend ! I agree very strongly with the volunteer who wrote that you should read ! Read ! Get on MAYO CLINICS SITE !! I trust this information!! When I read I also take notes ! Get a notebook specifically for your medical information
And write information!! I find that I remember more and also helps me find what I read !! You are young ! You can learn ! Need to learn so that when you go to doctors you can ask good important questions!! Also ? Write down questions you want to ask?? That is why it’s extremely important you learn as much as you can!!
Knowledge is key to understanding what the doctors are saying !!
I read and read and take notes!! Eventually you will realize that you are understanding about your illness! You will learn what are important questions you should ask !! Doctors are extremely busy !! They have limited time to give us ! You have many years to live !! It’s worth battling for !
May you be BLESSED
Connect
@jadams4197 Welcome to Mayo Clinic Connect! @auntieoakley is right about there being so many things to consider while you research this condition! She is a gem and oh! so knowledgeable in this.
Multiple Myeloma has several different types and the treatments can vary widely. Please do not go down a rabbit hole of using Dr. Google! Your situation is similar to others, but unique to you. A good hematologist-oncologist will take into account not only your multiple myeloma, but any other health condition you are living with, to help trailer a treatment plan that will work best for you.
For today, take a deep breath. Grab a cup of tea and a couple of cookies, and relax. Can you try that?
Ginger