Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
You are more than welcome bluelagoon. If you are taking cardio classes you are breathing well, I'm guessing. lol. Wow- good for you. Can you continue classes while on chemo? I was so very tired I could barley do anything, never mind get in a class and jump around.
colleen is certainly the expert, and I also urge you to get a second opinion. Being a lung caner survivor I know many people who had received help with stage 3 and stage 4 lung cancers because of the many drugs available that can target lung cancer. However most everyone gets their treatments at a
major research university or medical center. Morphine, in my case did not help but created a breathing issue. Accupunture really helped my pain.
I hope this helps. All my best,
Merry, Good question! First, and the most interesting thing I learned, was what I learned about the exercises I received to do post- surgery. I found myself forgetting to do them because they were more basic than what I did before surgery but naturally I couldn't return to those classes for several weeks. Well, I love my local Y and reached out to one of my instructors to ask if another class like the cancer survivors class that was on their program would be suitable and she suggested I check out a Silver Sneakers class, which is attended by mostly Medicare age folks several years older than me. But, she said it got a range of age and levels. Well, the classes I attended were so close to the post-surgery PT instructions I received it was amazing and kept me on track until I could start to go back to my old classes. (And, that instructor happened to attend the same classes I went back to and made sure I didn't "push it" when I returned!) As to while I had chemo- since I was very fortunate to not have more than a day or 2 of real side effects I tried to get outside and walk the dog or garden the first few days after each treatment just to move around because I learned rather accidentally when we got back from the first round and had left new plants that had to get in the ground or die that it really helped, even when I didn't think I had the mojo. Then, after the first week I would get back to classes. I did get in the habit of sleeping later from the recuperation weeks so I have adjusted my schedule and found classes I'd never imagined attending, like a "hip-hop" class. So, that's been my silver lining!
@bluelagoon- This is such a success story! I will be going back to my hospital's follow-up rehab program. I had a very serious infection that I have finally recovered from, not connected with cancer. Once a week for $30.00/month I have a private trainer and I can use the gym as often as I want. The trainer takes my vital signs throughout the exercise time and oxygen is available if need be for anyone. My trainer also had cancer so he's attuned to my moods and limitations. He was also my first trainer when I first started!
You are so right on. What do those people do with out hope and faith in our Lord and Savior. I can't even imagine. Thank you for reminding us all, there is a greater, more perfect plan for us. Blessings, Mary Lou
Good morning. My name is sakota and am dealing with multifocal andecarcinoma since 2011 and copd
Good morning and a warm welcome @sakota! I can't believe that I have finally "met" someone else with multifocal adenocarcinoma. Is it of the lung? I have had it for 21 years. Please tell me where you stand in your history. Do you have a new lesion?
I was first diagnosed in 2011. For the past year have been stable but go for ct scans of my lungs every 3 or 6 months. I go again next week. Something has been changing in my lower left lung that the have been watching. I come back to mayo in february to see pulmonologist. For my copd am on 2 inhalers daily and one for emergencies Will post how the next scan turns out.
Sakota- How many cancers have you had? I've had 4. I also have the same number of inhalers. But in pulmonary rehab we were told to inhale the rescue inhaler every morning before the other 2. It opens up your "pipes" for the others. Than wait 1 minute and do the others. I always seem to have something brewing in my lower left lung. Do you have any symptoms?
Merry. I have had four also. Three in my right lung and one in my left. As for symptoms. Can’t tell if it’s all from copd or not. Haven’t heard about using the one inhaler first. I also did the pulmonary rehab. Helps a lot.