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Any experience with taking Kinsula?

Caregivers: Dementia | Last Active: 6 days ago | Replies (7)

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Anyone considering Kisunla or Leqembi should read this article.
https://share.google/UYqQWJL62bgMemErS.
My 82 yo significant other has been seeing a neurologist since last Nov. Her blood test, cognitive assessment and MRI all indicate alz. She is on donepezil and memantine.

Yesterday she had an amyloid petscan. The next step will probably be a recommendation to begin Leqembi injections. There are some serious side effects associated with it and Kisunla. The benefit they claim is that both remove amyloid deposits in the brain. One removes one kind of deposit. The other removes another kind. There is no medical evidence that removing these deposits reduces the effects of alz. Both claim they slow it down but there is no way to measure how much. Even though most of the cost is paid by our Medicare Advantage plan, the risks of brain bleeds and other side effects are significant. I have a lot of questions for the neurologist. If I had to make a decision today, based on what I know, I would not recommend them.

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Replies to "Anyone considering Kisunla or Leqembi should read this article. https://share.google/UYqQWJL62bgMemErS. My 82 yo significant other has..."

@longboat1 Thank you for your input. The web site you referenced is very interesting. I also have misgivings about the Kisunla treatment. How to decide if we should try it or not? I am waiting to see what the PET scan says and then I will try to explain to my husband the risks and possible benefits. He does have on APOE4, so that makes it even harder.