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Anyone have experience with daratumumab (Darzalex) to treat Myeloma?
Blood Cancers & Disorders | Last Active: Oct 6 9:08am | Replies (10)Comment receiving replies
I didn’t have any problems with side effects the entire time I was on it except for a bit of itching at times. I was on Revlimid, Daratumumab and Dexamethasone from 2018-2022. It kept my myeloma under control during that time. It started to not work so opted for a stem cell transplant and switched to Pomalyst as maintenance. That worked for 2 years. I had a CAR- T treatment last March and am currently in remission.
Multiple Myeloma is something you
can not be complacent about. You need to have a good myeloma specialist and always keep learning and advocating for your husband.
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@jefe thank you for responding. He had his first stem cell 4 months after diagnosis, and a second 11 months later, then two years revlomid maintenance. The back on revlomid, dex after a year and a half, then a break, then revlomid, dev, with Ninlaro then a break. Then another year of same. He has been on a break for a year and a half again. This time he is going on Daratumamab, pomalyst, dex.
I noticed others here have required transfusions, and they are sending my husband for type and cross prior.
Did you require transfusions?