My wife tested positive for jak2 and has high platelet count

Posted by binkybunny @binkybunny, Sep 17 9:59pm

my wife's routine blood test came back with high platelet count a few times in the past few years, every time the doctor would just brush it off and so would my wife. Finally this time I pushed the doctor to dig deeper and they did a jak2 test and it came back positive. My wife has a bone marrow biopsy scheduled for tomorrow.

Can someone give me some questions that I should be asking the doctor during the appointment tomorrow? So far the doctor says she may have ET. He says because the platelet count has been high for so many years it is unlikely it is anything to serious or "she would be dead by now" his words. We are planning on getting a new doctor after the biopsy but please give me some information regarding our situation if possible. I've been searching online and from what I'm reading it seems like if you are jak2 positive you most likely have an MPN which could be 1. PV 2. ET or 3. MPN.

The rest of my wife's blood tests all came back normal, she is 36 years old.

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tinak123 | @tinak123 | Oct 3 11:24am

More than likely ET, that’s what I have. It is a rare blood cancer, but is manageable with aspirin and possibly hydroxyurea. She is young though, so should have a long life. Not many treatments for it as it is rare.

cec2 | @cec2 | Oct 3 8:09pm

In reply to @toste "@binkybunny the cancer blood specialist told my husband he wasn’t really worried unless it gets over..." + (show)

@toste
That's what my oncologist told me, too. If my platelet count gets above 600k, he said he'd prescribe a chemo pill. For now I'm on a coated low dose 81mg aspirin daily.

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