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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 13 8:16pm | Replies (899)Comment receiving replies
@peggykmitchell — I have HCM but I don’t have any of the genes. I have been gene-tested three separate times.
On the other hand, my two grandsons have been tested and found to have the genes. Both are non-symptomatic so far.
Replies to "@peggykmitchell — I have HCM but I don’t have any of the genes. I have been..."
@jimhealthy Please read what I wrote to @rebaheizer. In my opinion, your HCM gene is probably among the undiscovered (I read somewhere that perhaps half have been found). What about the PARENTS of your nonsystematic grandsons? If the gene was not found in you (so far), it would not be found in your child unless your wife has it- a different one than yours. Yet, if your grandsons' HCM gene has been identified, the marry-into-the-family spouse may be the one who passed it on to your grandsons. Hope this makes sense!
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@jimhealthy maybe your spouse carries the gene.