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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 13 8:16pm | Replies (899)
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Profile picture for rebaheizer @rebaheizer

@peggykmitchell you may or may not carry the gene related to HCM. I have a gene mutation but not the pathogenic gene associated with Hcm but still have Hcm. The gene test determines who else maybe needs screening like parents, siblings or children.
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Replies to "@peggykmitchell you may or may not carry the gene related to HCM. I have a gene..."
walkinggirl | @walkinggirl | Oct 5 9:04am

@rebaheizer The particular gene that causes your HCM probably has not been found as of now. When looking for my mutated gene, 123 of the known HCM-causing genes (in 2022) were tested and all were OK. I was told to contact them in 5 years at which time more will probably have been discovered. We would check my DNA for these new findings.

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