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Chiari Malformation type 1

Brain & Nervous System | Last Active: Oct 6 3:59am | Replies (155)

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Profile picture for tisme @tisme

my neuro wants me to have surgery , fossa decompression, I have put it off for over a year or more as I didnt think the risks were worth it , things have gotten worse, headaches /dizzy etc but I still fear the risks.

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Replies to "my neuro wants me to have surgery , fossa decompression, I have put it off for..."

@tisme I guess it really would depend on how debilitating your headaches are. I have suffered with headaches and dizziness since I was nine years old. I wasn’t diagnosed with Chiari 1 until I was 36. My headaches however have improved over the last year when my rheumatologist put me on hydroxychloroquine and methotrexate for another condition that I have, which has relieved some of the fluid buildup from my chiari. I have chosen not to have surgery and have a 15 mm herniation. I have been to two neurologists, one saying I needed surgery, the other thinks I don’t need surgery. The neurosurgeon told me not to come back unless I make up my mind. That was 10 years ago. I still haven’t had surgery. I hope you find the answer for your headache. I wish you luck in your journey.