Fear of radiation after lumpectomy
I was seriously thinking of refusing radiation after lumpectomy because I had complete removal of tumor with wide negative margins. I was convinced that there would be no lung, rib, or heart radiation by using the prone(lying on stomach) with breast hanging down. They have been very careful with treatments & very accommodating so after 4 treatments I am feeling more secure by my decision to do this to ensure all cancer was caught.
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@peggrady
I had the same diagnosis at about the same age. I wanted to go after it with everything I could. I did double mastectomy, chemo before and after, no reconstruction so that I could heal quickly and feel any changes more easily.
I had the ATM gene and wonder if you had any genetic testing. There are cautions about radiation with the ATM gene.
I take a statin as MD Anderson has research that suggests it can help with reoccurrence. I eat an orange and blueberries each morning, limit red meat, do as much organic as possible, exercise 30 minutes a day, only an occasional glass of wine, keep my weight under control. Hope we can both keep on keeping on. My best to you.
I had colon cancer in 2016, L. breast lumpectomy 2020, R. breast lumpectomy 2024. Radiation only with lumpectomies. But around 30-40 years of
mammograms every two years. Recently had a genetic test ( blood test) and learned the TP53 gene is a pathogenic variant. It is hereditary with a higher chance of developing certain cancers. Both siblings and my daughter need to be tested. 50% chance of having it. If so then their kids should also be tested, If they don’t have the variant then they and kids just have same
risk as anyone. The info suggested avoiding radiation so now I worry about
continuing with mammos. Maybe too late to worry as I had them so many years. But I can ask my dr. for. breast MRI.
@drummergirl thanks for all the information. I'll ask my doctor about the statin and will follow your lead with the orange and blueberries and all the other healthy things. Let's keep on keeping on until we are really old old ladies and ready to rest. My best to you as well. Life is an adventure.
@lynnn It's all so confusing but from what I understand the radiation in mammos is targeted so much better now than in previous years. Your doc will know your risks. I had a breast MRI and was really hesitant as I'm claustrophobic but it wasn't bad as it's done on your stomach so I didn't feel quite so confined. So much to learn and think about. Thanks for sharing your story and I'm hoping your siblings and daughter don't have the problem with the TP53 gene. Hugs to you.
@peggrady
Thumbs up on that Peg! Love your positive spirit😄
@peggrady
https://www.mdanderson.org/newsroom/statins-may-improve-survival-for-triple-negative-breast-cancer-patients.h00-159462423.html
@peggrady thank you. I had mammos for so many years likely before they were targeted as in recent years.
I am in Ottawa and eligible for so many tests due to this so I guess that will help for spotting anything worrisome. Fortunately I don’t have to pay for any med care here. I’d be in the poor house.
@beachbabe
Did you take a Her2 targeted therapy like Herceptin?
@drummergirl
I thought my side effects were caused by the Tamoxifen and they lasted way too long after I stopped taking the pill. Then I finally had two weeks where I felt my old self again. Now, this third week, the side effects have returned for a part of all of the last four days. Is it known what side effects radiation has in the long run? I wonder if there are too many variations to deal with isolating what is caused by radiation and what is not.
@luckbme
Sorry, I did not have radiation. The tumor I had was located above my heart and I had the ATM gene. Because of these things, I wanted to avoid radiation. I was told with a double mastectomy, I would not have to have radiation.
Radiation certainly has side effects, but I can’t speak to any personal experience.
Hope you start to feel better soon.