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Pain in legs with PMR
Has anyone experienced severe buttocks pain and running all the way down into your shins and calves? My Rheumatologist says that is more likely a back nerve compression issue when it gets below the knees. But my spine doctor doesn't think that is the issue even though my MRI shows moderate spinal stenosis and a herniated disk. To my amazement, when I mentioned PMR, he asked what is that! It takes months to see a doctor and when you do they tell you go see another doctor! Meanwhile I'm in a lot of pain and the poison, prednisone.
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@ropnrose how do you know it’s from the statin and not PMR? Can they mimic each other? Maybe taking a statin with PMR makes the pain worse? I have PMR and also take Simvastatin. My Doc says there’s no connection, but I’m not so sure.
@aflik I don't have answers to your questions. I have not had a discussion with my doc regarding the statin and PMR. Since Prednisone and Actemra can increase cholesterol, I never considered eliminating it. I'm happy that I am relatively pain free. I have some minor hip and knee pain, but I'm 69 yo. I've finally been able to increase my activity level this summer.
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1 ReactionThere is a previous post related to Vitamin D deficiency. After checking vitamin D level, I additional vitamin D and the leg pain reduced to almost nothing. Try an internet search for NIH PMC12430293. There is a PubMed Central article on the study, "Vitamin D Status and Response to Supplementation as Predictive Factors for Early Remission in Polymyalgia Rheumatica".
On leg pain: one of my first symptoms was pain in the quadriceps, along with unnatural hip movement. (Other muscles and joints followed, and thankfully I seem to be tapering prednisone successfully for the moment.) And on the association with other drugs, I cannot tolerate omeprazole: extreme pain in the thighs.