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Pulmonary Fibrosis Meds
Hubby and I will be seeing his pulmonologist tomorrow for suggestions on pulmonary fibrosis meds to help with his breathing.
Anyone have experience with these?
Which have the fewest side effects?
Which should be avoided?
Does Medicare cover drugs like Esbriet and Ofev? Are they better than steroids?
Many thanks!
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My situation with IPF gets complicated bc because I have Ankylosing Spondylitis, Addison's Disease and IPF. If I take steroids to help it plays hell with my Addison's Disease and throws my entire hormone system out of my balance. Not sure if I can take preventative medications without some serious side affects. Is there anyone else with Addison's Disease taking these medications?
There are only 2 that I know of Ofev and Esbriet. Esbriet seems to have less side effects from what I've read
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1 ReactionFrom what I've read, Esbriet has less side effects.
Hubby had to cut back because of occasional nosebleeds, but is still taking Esbriet.
I have pulmonary fibrosis with autoimmune features for which I have been taking Cellcept/mycophenolate for over two years now. I have had minimal side effects. All of my meds have been covered by Blue Cross Blue Shield.
My wife was on Esbriet for 6 years with no side effects until she passed away peacefully in 2020 on her Birthday and Christmas eve. She was cooking food at 1Pm but passed away that night as oxygen stopped working. Doctors at UCLA warned us that is the likely outcome for her.
Wish you the best