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elm123 avatar

Any experience with taking Kinsula?

Caregivers: Dementia | Last Active: 6 days ago | Replies (7)

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I'm so sorry that you and your husband had to go thru that. Sounds very scary for both of you. My husband is early in his Alzheimer's diagnosis, so I have been hoping this will help. He still has to have the PET scan before even making an appointment for his first infusion. He wants to try it. I hope the medicine doesn't make it worse. It's so hard to know what to do, since, as you said, the confusion and memory issues are already there. I am sending nothing but good thoughts to you and your husband.

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Replies to "I'm so sorry that you and your husband had to go thru that. Sounds very scary..."

@elm123 well it turned out he has positive blood cultures for E. coli and some other one. He’s in hospital to receive iv antibiotics. So unknown if related to infusion? He is much better already tho. And I’m still happy tried the infusion. Visit with neuro Oct 9. Will see where we go from here