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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi @jatonlouise - I believe your message to @sillyblone may have gotten cut off.

@jfayesj0urney and @sillyblone - have you (or your husband) found anything that helps stop the exhaustion from arising?

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Replies to "Hi @jatonlouise - I believe your message to @sillyblone may have gotten cut off. @jfayesj0urney and..."

@lisalucier after I was diagnosed and starrted taking L-dopa. I still had sone OFF timed. However, i was lucky enough to been living in Germany and to have my particular neurologist, who was on the medical board that approved the ABBvie pump for use in the EU, and she put ne on the pump. The only problem or OFF time is when I've done somethingbstupid, like forgot to turn it back on after taking a shower. I'm 80 years old, and was bed-ridden for over a year so those 2 things put some limits on my energy. But I" m feeling pretty good, all things considered.

@lisalucier
My spouse takes naps more then before. I would say in the last couple of years. He has been doing PT and he is more alert. But still falls because he either forgets or he does something careless. His biggest thing lately is his anger. I know it is the disease process, but it certainly is not my fault either. I have gotten used to him doing the blame game. I try to stay quiet..but hard sometimes. I have so much empathy in my whole being and would take this condition from him if I could. I might be worse. I still do not know if I might have Parkinsons as my Dad and brother have it. I am concerned for my children and grandchildren. I know this was off the subject, Thank you for your input and your sharing. I really do know that this site helps us all to deal with the conditions and possibly help someone else.🫂