This is great, @lindabees. Thank you so much for sharing your story and for helping others on Mayo Clinic Connect.

My father-in-law had PNETs. He did, sadly, pass away this June from metastases subsuming his liver after basically all his significant treatment options ran out. But due to some amazing treatments over the years, his life was extended many-fold, and we were so grateful.

Anything you can do to encourage others with this disease with which many people are not familiar yet is just fabulous.