Hi @massee01 - welcome to Mayo Clinic Connect. I'm glad you personally got some answers, and I appreciate your interest in helping others streamline the process to getting a diagnosis. I think a long and winding journey to a diagnosis is hard on everyone. It delays any treatment, psychological adjustment and/or treatment, logistical planning and more.

If you could post in this discussion the names of the tests you were given that gave you a definitive diagnosis with Lewy body dementia with Parkinson, I think that would be helpful for other members.

If I understand correctly, these are tests for those who have a family history of this disease or similar? If you have any information on eligibility/ suitability for these tests, that would be great.

Also, massee01, when were you given your diagnosis? How are you feeling about it?