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Oral liken planus

Autoimmune Diseases | Last Active: 5 days ago | Replies (12)

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@sadea0208 I also have oral lichen planus and esophageal lichen planus. I seem to now have a lesion on inside of lower lip. What treatment have you received for these areas? Especially interested in esophageal treatment.

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Replies to "@sadea0208 I also have oral lichen planus and esophageal lichen planus. I seem to now have..."

@beckdog At this time the only treatment I receive for my Oral Lichen Planus is to go into the surgery center and be put under general anesthesia so they can try to stretch my esophagus and have more biopsies done. I now have a few areas with abnormal cells, precancerous. Unfortunately I am needing to have this done more frequently. Unfortunately, I'm going into the surgery center today again. This will be the sixth time since my diagnosis four years ago.
When I saw my specialist yesterday he suggested I see another specialist. The most recent studies on ELP, 2019-2025 to date, have suggested a couple of medications which suppress the immune system in an attempt to reduce the continual swelling in the esophagus. One of the medications is budesnide orodispersible tablets. Unfortunately this medication is a corticosteroid. There is another medication I could try that is not a corticosteroid. Honestly, I don't like corticosteroids. The side effects can be awful for some patients. I plan to see this other specialist in six weeks.
My main concern at this point is the development of cancer. I have biopsies done every time I have my esophagus dilated. It's very important to catch the cancer early before it spreads.
Honestly, I am very fearful of the cancerous growths. Esophageal cancer is very bad.
Once I see another specialist I will post the other treatments on the Esophageal Lichen Planus page here.
I may also go and see a specialist at the University of Washington.