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Oxaliplatin is no walk in the park, advice for CAPOX regimen?

Posted by chinoomee @chinoomee, Mar 7, 2024

Just had first infusion today.
Felt fine and now hours later everything hurts ( numbness, tingling, muscle aches, muscle spasms upon sneezing in my jaw, muscle spasms across my eyes/temple upon tear production and of course upon water being just slightly cooler than room temp) how did you guys manage?

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angielewis1959 | @angielewis1959 | 3 days ago

My doctor recommended the Lifepro Vibration Plate with handlebar and magnetic accupoints. I purchased mine from Amazon. It was around $113.00, but I think they have went up in price.

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Lee | @leeb123 | 2 days ago

I'm on follow regimen.
My first 3 treatments were tough.
I've had the "push" removed and a dose reduction.
I have two treatments left before radiation.
Currently my platelets are low and I'm delayed a week.
There is no handbook for this crap, read what others have done to cope.

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Lee | @leeb123 | 2 days ago
In reply to @leeb123 "I'm on follow regimen. My first 3 treatments were tough. I've had the "push" removed and..." + (show)
Profile picture for Lee @leeb123

I'm on follow regimen.
My first 3 treatments were tough.
I've had the "push" removed and a dose reduction.
I have two treatments left before radiation.
Currently my platelets are low and I'm delayed a week.
There is no handbook for this crap, read what others have done to cope.

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@leeb123 folfox

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cvestor | @cvestor | 2 days ago
In reply to @llad24 "Do you still have Neuropathy side effects after finishing treatment? I'm starting my FOLFOX treatment for..." + (show)
Profile picture for llad24 @llad24

Do you still have Neuropathy side effects after finishing treatment? I'm starting my FOLFOX treatment for 6 months next week and this is one of the side effects that scares me. I'm very active, still in the military and I believe if I get all those neuropathy side effects it will affect my military career big time. My oncologist didn't like the idea of using Cryotherapy during treatment, even though a lot of people had success in mitigating those neuropathy and cold sensation side effects. I will see how first treatment goes.

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@llad 24 The first treatment in my case did not affect me it was after the 8th treatment that the $%^&* hit the fan No cure just live with it And keep your mouth shut about the side effects which you will have Just go slow and you can make excuses for the unbalance step here & there It is a tuff road Felt I would never see the light at the end of the tunnel but I did it and am cancer free so far You can do it as I did not think this stuff would work but it does

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