← Return to Severe Iron Overload caused by too many IV Iron infusions

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Profile picture for kdalda75 @kndaustin71

I feel that I was a victim as well. At 39 I had the right side of my head go cement numb only to find out I had a brain tumor the size of ping pong ball in the right side of my head. The neurosurgeon I saw had a one man office, with his Dad. He had no idea what the tumor was except that it was benign....says he conversed with peer from other places. Too scared to even think. Long story short I was left with 3, 5 & 7 nerve damage. Right lid doesn't come up, eye ball frozen forward, but on the bright side everything else, including my big mouth moves. It destroyed my psyche, being female and just turning 40...I have never recovered from the anger. Didn't let it completely destroy me tho as I continued with my career as a RN, got my Masters and always held Administrative positions. He should have sent to to a high level of care! Even wrote him a letter about 2 years ago expressing just that and letting him know he forgot the "do no harm" sorry to go on and on but that's what people my age do!
There has got to be a way in which the attorney can continue....even with no heirs. I will think! Bless you!

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Replies to "I feel that I was a victim as well. At 39 I had the right side..."

@kndaustin71 Thank you. I appreciate you sharing some of your own story. It makes me wonder how many medical mistakes have caused people to suffer and others to die. I'm suffering and dying. If MAYO can do anything for me at this late stage, when I've already lost 2 organs and my liver is severely overloaded. That said, I don't know what I'll do if they can't help me. I'm in danger of losing my liver to Cirrhosis and my remaining kidney may atrophy like the left one did. Nobody seems overly concerned about my Pancreas atrophying, even though AI says that though I'm not diabetic, the lack of a Pancreas usually causes Diabetes Melilites. And then there's my heart. The ferritin level has dropped from a high of 2149ng/ml to an average of about 1000ng/ml. If it gets in my heart tissue and/or muscles that's it. God bless you.