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Polymyalgia Rheumatica (PMR) | Last Active: 6 days ago | Replies (18)
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@aflik
Actemra blocks one source of inflammation, IL-6. You must have additional kinds of inflammation that are active. I started Actemra about 6 weeks after diagnosis, and I've been taking it for 14 months. I've been off of prednisone for about 6 weeks. I haven't had any symptoms of PMR or GCA since I started treatment 15 months ago.
You could try Rinvoq. It works differently than Actemra, and is approved to treat GCA.
Replies to "@aflik Actemra blocks one source of inflammation, IL-6. You must have additional kinds of inflammation that..."
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@jeff97 thank you!
I don’t have GCA. I know Actemra is primarily used for GCA and off label for PMR. I’ll be discussing the continued use of Actemra with my Doc during my next visit. Rinvoq seems to have some bad side effects.