Arteriovenous Malformation (AVM) survival and side effects

Posted by auldcelt @auldcelt, Dec 16, 2016

I'm a survivor of an AVM in my right hemisphere. Since the surgery I am dealing wth migraines and wondered if anyone else has experienced this. If you have what have you tried to get back to normal living. I'm also interested in reading about studies and research on AVMs

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

Lisa Lucier, Moderator | @lisalucier | Sep 30, 2025

Hi, @auldcelt - wondering how you are doing lately?

lynf | @lynf | Jan 14 5:27am

In reply to @stellgma "Hello, does anyone else have a dura brain fistula? I was diagnosed with 2 of them..." + (show)

@stellgma
Hello, I had a Dural artiovenous fistula DAVF. I’d be happy to chat if it would be helpful to you.

Lisa Lucier, Moderator | @lisalucier | 6 days ago

In reply to @mockinbrd "I'm so pleased you were able to stumble across this forum. I think you will find..." + (show)

@mockinbrd - I see that you had a craniotomy a few years back, and I'm wondering how you are doing now?

mockinbrd | @mockinbrd | 6 days ago

In reply to @lisalucier "@mockinbrd - I see that you had a craniotomy a few years back, and I'm wondering..." + (show)

@lisalucier
Hello Lisa,
Thanks for thinking of me. I’m doing pretty darn good. Still have some diminished abilities. But I think Mayo is such an incredible place. I would recommend it to everyone. My doctor, Giuseppe Lanzino, is the best. And I have the privilege to send him and nurse Reps a valentine’s flower on each the anniversary of my surgery, February 14th.