Connect
← Return to Parkinsonism Traits with No Diagnosis I’m Frustrated, Anyone else?
Discussion
Parkinsonism Traits with No Diagnosis I’m Frustrated, Anyone else?
Parkinson's Disease | Last Active: Oct 29 7:38am | Replies (25)Comment receiving replies
@SusanEllen66 - Having only a "best guess" after four years of testing would be really hard. I'm sorry to hear that.
I'd like to tag a few Mayo Clinic Connect members who may empathize with the results you've gotten after all this testing or have other thoughts for you from their personal experiences or those of a loved one. Please meet @larryh123 @hbjuniperflat @teacher502 @raebaby @amesmassage @psvantx @adrienne625 @katiecat1.
What did your PCP suggest you do next, SusanEllen66? Are you looking at getting another opinion?
Replies to "@SusanEllen66 - Having only a "best guess" after four years of testing would be really hard...."
@lisalucier last week I applied for an appointment with Mayo Phoenix, Scottsdale. Their Neurological is too busy to see me. About 10 years ago I had an appointment with neurology.
I also asked for an appointment with the Pulmonary Dept. because my blood oxygen levels tend to be low consistently. They didn’t turn me down (yet). I have to gather up reports.
My tremors are quite fast so I’m sure it’s not Parkinson’s.
Connect
@lisalucier at this point, I have seen 3 Neurologists who specialize in Movement Disorders. They all concluded, until very recently, that I have FMD/FND.
The other Neurologist is one I’ve been seeing for about 10 years because of Polyneuropathy. He diagnosed me with Alzheimer’s Dementia. When the movement issue started, he told me to go to a movement specialist, and I did.
The Alzheimer’s diagnosis was incorrect. Now they say I have MCI with visual memory loss.
The end of this month, I will be 76. I live alone in my own home, and am struggling a bit to maintain it.
I can’t imagine going through more “hoops” for now, so I will see what happens next and go from there.
Thank you for your help!