Hello @bobconfused,

Neurological problems can be challenging to diagnose, as so many symptoms of various disorders tend to overlap. I had symptoms for at least 10 years prior to my diagnosis so I really understand how frustrating it can be.

Many of @jatonlouise's suggestions are good. Especially about taking copious notes about your symptoms, when they appear (for example, are your symptoms worse early in the day or later in the afternoon when you are tired, etc.), how your symptoms respond to exercise, rest, etc. Do you have pain accompanied by stiffness, etc. @kayak461, also made a good suggestion about visiting the Davis Phinney Foundation website. They really have great webinars that are available to view and offer great educational material.

I found an article on the Mayo Clinic that I found pretty helpful as an overview of PD symptoms. I would encourage you to read this article. Here is the link, https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/symptoms-causes/syc-20376055. After you read the symptoms listed there, write down the ones that apply to you and take notes about how often these symptoms occur.

Next, go to the Diagnosis and Treatment icon. Here is the link: https://www.mayoclinic.org/diseases-conditions/parkinsons-disease/diagnosis-treatment/drc-20376062. Here, it lists all the different ways to diagnose PD. One of the diagnostic methods that worked for me was the following:

"A short, low-dose treatment of medicines. You may be given medicines used to treat Parkinson's disease to see if you get better. If your symptoms improve significantly, this may help confirm your diagnosis. You must be given a sufficient dose to show the benefit, as getting low doses for a day or two isn't reliable."

After 10 years of stumbling, walking awkwardly, being extremely fatigued, and having numerous tests and scans to rule out other brain disorders, the new neurologist I saw suggested that I start a dose of Carbidopa/Levadopa, and I found relief from my symptoms. I realize that starting medicine before being diagnosed seems a bit backward, but it made a difference for me. By the way, I also had the DAT scan, and it was also normal, but without the medication, the symptoms worsen.

While I haven't read all your posts, I'm wondering if you have sought a second opinion. Over the years, I undoubtedly consulted with at least five different neurologists. Finally, after 10 years, I found a neurologist who was willing to try me on a low dose of PD meds, and that confirmed what I already realized to be true.

As many others have said, keep persisting. I know it can be discouraging, but it is essential not to let yourself think there is no help. Being your own advocate for the best possible care is not easy, but it is definitely worth the effort.

I look forward to hearing from you again. Will you continue to post as you look for answers?