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Bilateral Nerve Pain Following Prostatectomy

Prostate Cancer | Last Active: Jul 11, 2022 | Replies (23)

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@lowth21

Hi All. Thank you for resurrecting my original post from back in March 2017. Since then I have done a lot of research and spoken to a few specialists. We have come to the conclusion that my PFCN (Posterior Femoral Cutaneous Nerve) was damaged during surgery and causing my sitting pain. This nerve passes right down the outside edge of my sit bones and continues right down the back of the leg. I am still having problem sitting but not as bad as before. A strange thing has happened over the last 4 years. I originally had pain sitting bilaterally for 5 years and then the pain went away on one side and then 12 months later it swapped sides. Very strange!!! My Doctor has changed my medication to Palexia some 5 months ago. I take IR 150 2 hours before I have to sit for a longer period ie driving and then SR50 1/2 hour before I have to sit. I now get some relief from this medication. In April I am also seeing a specialist to undertake a Radio Frequency Neurotomy on my PFCN to see if that assists me in sitting for a longer period. I will update my post after I have the RFN. Good luck all with your individual problems. Stay positive and most importantly talk to someone if it is getting you down

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Replies to "Hi All. Thank you for resurrecting my original post from back in March 2017. Since then..."

Glad you are doing better and glad you had doctors who were really trying to help you. My dr who did the operation basically threw me over the fence. On my own. I have been to chiropractors and pain clinics and rehabilitation centers. No help. Last thing I tried was having 5 nerves in the last vertebrae. Not much better. Drs are afraid to prescribe any pain meds so I basically OD on over the counter stuff. Walked 10 miles a day before my operation. Have a hard time walking from the parking lot to the shopping cart in Walmart. At my wits end.