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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Oct 2 10:08am | Replies (1104)

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Profile picture for mphaddican @mphaddican

Sorry to be so vague. I am not a physician but my husband was diagnosed with MGUS many years ago. He finally made an appointment Dana Farber. His blood test showed an IGM high level and it indicted that he had Walldenstroms. It is very rare .
If the IGM is high it can indicate that. Don’t be afraid I am just throwing that out there. It is rare and some times missed
On a good note he has had infusion treatments over 6 years ago and is doing fine. His level has been normal.
Mayo is very familiar with that disease and has been helpful too.
M

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Replies to "Sorry to be so vague. I am not a physician but my husband was diagnosed with..."

@mphaddican

I’m so sorry to hear that. Both your minds must be full of mixed emotions/anxiety.
I know with MGUS (I can spend hours educating myself) that IgM levels are low (lower than IgG) so anything considered high for that is well concerning. Medical professionals don’t always answer questions (lots of poker faces) …

@mphaddican Oh sorry. I just didn't get it but I see what you're saying now.

I'm sorry to hear about your husband. I hope the treatments work out for him.