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New to exocrine pancreatic insufficiency (EPI): What helps?
Digestive Health | Last Active: 4 days ago | Replies (173)Comment receiving replies
@howboy
Hi! I am particularly interested in the fact that you (like me) have been eating well, organic, etc for a long time. This usually indicates other wholesome lifestyle traits. I too, have had digestive issues for a long time leading to a period of malnutrition prior to the diagnosis of EPI.
I have been on Creon for over 2 years and continue to have digestive issues, although it has helped me tremendously.
I just wanted to mention my added diagnoses of leaky gut, food/additives/pesticide sensitivities (administered by wellness practitioner/nutritionist) and IBS in the hopes you may want to pursue further causes of your discomfort.
It is still difficult to manage and may further complicate your diet, supplementation and treatments, but may be worth it in the long run.
These diagnoses seem to go " hand in hand". Which came first is a mystery, but I think they are still missed by mainstream practitioners.
Replies to "@howboy Hi! I am particularly interested in the fact that you (like me) have been eating..."
@dianehrdr Part 2, I realized that I didn't address the book question.
simply put it's a rice porridge similar to congee. There are a lot of recipes on line for it. I make it in my Insstantpot. The ratio is a little rice to a lot of water, and it cooks for a long time until the rice "explodes". The jook is starchy and smooth and miraculous for settling my stomach. I sometimes add chopped tomatoes to it at the start, or some chicken powder for added flavor. Sometimes some mushrooms. Sometimes I add some white meat chicken (at the start or finish). I think it's delicious and I eat an entire pot over the course of a day and it always works for settling my stomach.
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@dianehrdr Hi Diane. You may want to read the reply I just made to Lisa Lucier about my Creon experience so far--it's been a few months. My doctor said that the fact that I eat healthfully is probably what kept me going, since only a small portion of the nutritional value of the food was digested by my stomach. I always looked great and had lots of energy but I was running on empty.