← Return to Lanreotide shot given too fast, any side effects?

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Profile picture for tltnnc2023 @tltnnc2023

I was diagnosed with NET (liver & thyroid) in Sept. 2023. Started Lanreotide shots then and continue with it and daily Everolimus pill (started pill in Oct. 2024. Now to your question. In May 2024, the local cancer center administered the Lanreotide incorrectly ( interestingly I was in the process of changing to a NET oncologist specialist as the local hospital had only a few NET patients and honestly we new more about the disease than they did (everyone, please research every step in your care). How was it administered incorrectly: 1.) the 120 mg material was not brought up to room or body temp, 2.) it was injected in under 10 seconds for the full dosage (quite painful). 3.) staff admitted misapplication but provided no assistance in understanding side effects 4.) side effects were significant bruising and knot at injection site, plus significant rash and flushing which I had never had. Recovered from such in approx. 10 days. I reported all to local hospital administration which they admitted to incorrect admin. Further reported issue to Ipsen pharma which they reported hospital to FDA. Hospital staff had to be retrained by Ipsen and go through EPA review. My current NET team felt that I did not gain full advantage of the drug, but no research is available to verify such. I am fortunate that we were already in the process of moving my care to a great NET Team and feel fortunate that my NET is stable after two years of ongoing treatment. While my NET is fairly low grade it is stable with a 8cm mass on my liver and several on various lymph nodes. My NET will not accept PRRT so hopefully staying stable. All the best to everyone. Stay Strong!

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Replies to "I was diagnosed with NET (liver & thyroid) in Sept. 2023. Started Lanreotide shots then and..."

@tltnnc2023 I can tell you I will not let that happen again. Learning as I go. Thank you for your input.