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New to exocrine pancreatic insufficiency (EPI): What helps?
Digestive Health | Last Active: 4 days ago | Replies (173)Comment receiving replies
@howboy - Hi, and welcome to Mayo Clinic Connect. This is a great place to get practical information from people who are "boots on the ground." Glad to hear you've gotten useful information before from fellow patients.
The way you eat and how much time you spend in the gym is impressive. I usually get in about 50 minutes at the gym and then need to return to work.
I had to look up jook, as I'd not heard of it before. Will you share a bit about what it is and why it seems to instantly calm your stomach?
Here is some Mayo Clinic information about amylase/lipase/pancrelipase/protease - oral route (brand name - Creon) https://www.mayoclinic.org/drugs-supplements/amylase-lipase-pancrelipase-protease-oral-route/description/drg-20065293
You will note that rapid weight gain is listed as a less common side effect.
Will you share more about why you feel that amylase/lipase/pancrelipase/protease - oral route (brand name - Creon) is tricky to use?
Replies to "@howboy - Hi, and welcome to Mayo Clinic Connect. This is a great place to get..."
@lisalucier Thank you for the warm welcome. I've found- I still feel like I'm in a Creon learning curve-that regulating the Creon dose is an art, one that I haven't mastered. I occasionally still have digestive episodes (euphemistically speaking) that fall outside my understanding of what I may have eaten that may have caused the problem, or if it's a dosing issue. Was it hidden fat that tipped the scales, or too much protein at one sitting. Did I take too much Creon or not enough? I'm coming to the conclusion that it may never be 100%, and that I should keep aiming for 100% but be content with something lower.
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@lisalucier
The first time I tried Creon, after a diagnose of atrophic pancrea and many years of having GI problems, my doctor prescribe a high dosage of Creon. I felt great for a few days, then I got a terrible pain underneath my left rib, I couln't walk strigh, and I had blood in my stool. I quit taking it and the symptoms went away.
Besides the spectraZyme I take PURE ENCAPSULATIONS Pancreatic Enzyme Formula, so far very good. Dosage: lipase 17,500 USP units, protease 110,000 USP units, amylase 120,000 USP units.
I take the SpectraZime with breakfast, I feel I need less support, the Pure Enc. for lunch, which is a big meal for me, and SpectraZime for dinner again.
Creon is more than tricky for me, I am afraid of it
Thank you for your interest
Mercedes
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