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Heart transplant: recovering but steroids are affecting behavior
Transplants | Last Active: Dec 21, 2020 | Replies (91)Comment receiving replies
@contentandwell i know it was basically a week. All i can say is the good Lord was there for me. I have heard that 6 months is the avg but i also heard much longer depending on blood type i guess
Replies to "@contentandwell i know it was basically a week. All i can say is the good Lord..."
Hi @dnab, my name is glinda I to have had a heart transplant I am 8 years post transplant as of January 20th of this year I caught a hold that destroyed my heart and waited from December 23rd of 2005 to January 20th of 2011 to get my heart as I am 0+ and it is extremely rare to get an o+ heart so yes it depends on the blood and tissue type also as to when you get the heart I got mine exactly 2days before my family would have been planning my funeral as my heart was that bad it was pure scar tissue and I never knew I had the heart attack as all I had was asthma symptoms but I had an ICD implanted in 2006 do to fainting and also had the home IV to keep my heart beating as my ef was not even 4% percent and I wasn't getting even a quarter of my blood that was oyxgenated by the time I had the transplant. So glad that you didn't have to wait long for yours and that you are doing great I just wanted to introduce myself and give you a little history on me and my journey to having to have the transplant feel free to ask me questions anytime
Glinda
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@danab As you probably know, the wait for a liver is generally more than a year, and with that too some blood types often get transplanted sooner than others. I think type O takes the longest because if a deceased person is an O their organ can go to anyone, whereas if it's one of the other types it can only go to that type.
I am a type B which is why I think I got my new liver about two months sooner than expected. I go to Mass General in Boston and in that region liver transplants tend to take place at a higher MELD than in some of the other areas. Mayo told me they could transplant me at 28, which I was at, so I was just about to turn there when one came through for me here. Phew. I know Mayo is a great hospital but so is Mass General and it certainly simplifies things if you can stay within your own region. At that time most liver transplants were taking place at around MELD 31 or 32 in Boston. I understand from following the posts of "Compare Transplant Centers" on Facebook that the MELD at transplant is actually at around 28 in Boston now too.
JK