Recently diagnosed with Gastroparesis

Posted by lusi0610 @lusi0610, Jul 6, 2024

Hello I’ve recently been diagnosed with Gastroparesis and have a question please. I read about a lot of you with g-tubes and implants. Can I ask how long did it take you to get to that point? I’m very scared to think this happens to most at some point.

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Profile picture for tsch @tsch

Your situation is not everyone's and hopefully doesn't frighten original poster. Bottom line is figuring what works, like you say.

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I wasn't trying to scare anyone, but not many seem to have it as bad as I do, be thankful for that. I have it under control most of the time.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @lusi0610 - the mention of you by @tsch made me want to check in on you and see how you are doing. What has happened with your gastroparesis? Did you end up having an intervention of some kind by your diagnosing physician?

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He told me to research, read all information I could find from other gastroenterologists and other who have it too. I found a natural herb called Marshmallow root that makes a tea, it coats and soothes the stomach lining. I told him about it, he looked into it and told me about another herb I could try. It's a natural herb and sold over the counter, it's called Fd guard, it's Caraway Oil and I-Menthol. Take 2 before a meal. It helps with bloating, swelling, nausea, upset stomach and difficulty in finishing a meal. It works.

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Profile picture for bevy65 @bevy65

I wasn't trying to scare anyone, but not many seem to have it as bad as I do, be thankful for that. I have it under control most of the time.

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I know from my daughter's experience it is a difficult condition and if you manage it, that is the best outcome. I think most do not progress to feeding tubes, but maybe I am wrong. I just hope not. For my daughter, its been up and down over the years, but she is doing ok now too.

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insulin dependent for thirty years now gastropareses along with neuropathy both legs am 81 now excessive gas has anyone been able to control all of this and stay alive? I am trying.

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Have it since JUNE of this year am 81 with insulin twice a day and neuropathy in both legs. Need a diet to keep going getting chills often. Has anyone any advice for all of this? My mind is working just fine to ask for help....GASTROPARESES IS WIERD............

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living with gastropareses...has anyone got any diet ideas?

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I have it since JUNE and it is now ALMOST OCTOBER. WILL try the Marshmallow root. THANK YOU FOR THE IDEA...

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Profile picture for bevy65 @bevy65

I wasn't trying to scare anyone, but not many seem to have it as bad as I do, be thankful for that. I have it under control most of the time.

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@bevy65 THANK YOU for the encouragement I need control and do not know how for most of it. I get chills with it often. STRANGE disease. GOD BLESS YOUR DAUGHTER SHE IS A BLESSING.

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Profile picture for margaretob @margaretob

insulin dependent for thirty years now gastropareses along with neuropathy both legs am 81 now excessive gas has anyone been able to control all of this and stay alive? I am trying.

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I’ve had type 1 for 26 years. When you say insulin dependent, do you mean type 1 or 2? The reason I ask is that type 2 offers more options now in the way of medication options. They aren’t really designed for type 1, though I know some who take them.

I realize this is a struggle. I’ve been on insulin pump (with integrated cgm and automated insulin delivery)for several years now. It helps.

I found the global online diabetes community to be very supportive. I get discouraged sometimes, but try to stay active, eat right and keep numbers down. I don’t think most people realize how hard it is. Sorry, I don’t have advice on gastroparesis.

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Profile picture for celia16 @celia16

I’ve had type 1 for 26 years. When you say insulin dependent, do you mean type 1 or 2? The reason I ask is that type 2 offers more options now in the way of medication options. They aren’t really designed for type 1, though I know some who take them.

I realize this is a struggle. I’ve been on insulin pump (with integrated cgm and automated insulin delivery)for several years now. It helps.

I found the global online diabetes community to be very supportive. I get discouraged sometimes, but try to stay active, eat right and keep numbers down. I don’t think most people realize how hard it is. Sorry, I don’t have advice on gastroparesis.

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@celia16 I had insulin dependency for 31 years take one 25 units day and 30 nights. GOT NEUROPATHY and crippled both knees got GASTROPARESES in JUNE FOR MY 81st Birthday...am working on it with liquids and a banana/soup diet...so far so good...GLAD TO HEAR FROM SOMEBODY THANKS....Margaret O

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