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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 14, 2025 | Replies (1089)Comment receiving replies
@colleenyoung
Hi my name is MelanieM & I going for my second echo for Camzyos. I felt better before the arrhythmia started. Maybe the medicine is causing me to be tired but I will find out next week from my Memphis Doctor. I hope to find a buddy that has obstructive HCM to talk to. I got HCM in March of this year and started Camzyos in August. I go to exercise 3-4 times a week. I teach 2 night a week.
This has been my journey.
Replies to "@colleenyoung Hi my name is MelanieM & I going for my second echo for Camzyos. I..."
@memphis901 I join @colleenyoung in welcoming you again to Mayo Clinic Connect.
You have come to the right place to find support for this disease.
It is a blessing to be able to share with another person who knows what you are going through, shares your same symptoms or questions and can give you a hand to hold or shoulder to lean on.
We are all in a different place with our HCM/HOCM, and those who have gone before you in the Camzyos treatment have much to share. And others, like me, who had open heart surgery can share that side with you.
Have you read up on hypertrophic cardiomyopathy? It's important to learn as much as you can so you can help your doctor in treatments going forward.
This is a link to an informative web site about HCM:
https://www.4hcm.org/
You were diagnosed in March, so it's probably still a lot to process.
When I learned what I had, I was stunned, but it started to make sense after I started reading all I could get my hands on.
My symptoms were gradual over time and I was misdiagnosed with four or five different heart conditions before finally getting the correct one.
You don't mention the medication you are on...is it a beta blocker? Those do make you tired...but so does HOCM!
It's good you are active...that will help you tremendously going forward.
In case you may not have read this, it is from the Mayo Clinic about HCM:
https://www.mayoclinic.org/departments-centers/hypertrophic-cardiomyopathy-clinic/overview/ovc-20442502
What do you teach?
Connect
@memphis901, welcome. Here is a good discussion to help you connect with other member starting Camzyos:
- Anyone take new drug Camzyos (mavacamten) for HCM?https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
There are many more: https://connect.mayoclinic.org/group/hypertrophic-cardiomyopathy-hcm/
I wonder if this discussion might interest you"
- Weight Lifting and exercise with hypertrophic cardiomyopathy: Tips? https://connect.mayoclinic.org/discussion/weight-lifting/